We get tons of emails, once in a while we get one that is just for a good cause and one that might bring a tear to your eye. This is one of those emails…
A few months ago, the incredible Stacey, a reader of the818.com, got in touch with me (and quite a few other bloggers she reads ~ possibly you too) about Kate and Mark Storm, close friends of hers whose sweet baby Getty had been diagnosed with SMA1; the number one genetic killer of infants under the age of two. Devastating. I needed to do more than post a badge on my blog.
When I learned that Stacey was coincidentally a fan of The Damnwells, a band whose members include my best friends Alex and Angela Dezen, sparks started flying, and soon Sweet Water Child: Lullabies for Getty was born.
Sweet Water Child is a beautiful album of lullabies my friends wrote and performed, the proceeds of which will go entirely to The Getty Owl Foundation, a newly established non-profit which Kate and Mark set up in their daughter’s honor.
Last week Getty Storm turned one. A huge milestone for an SMA baby. On Tuesday, April 5th, we’re finally giving her the birthday present we promised by releasing Lullabies for Getty via iTunes. That’s where (hopefully) you come in. ((and here we are!!))
We want to reach as many people as possible to purchase the album on April 5th so it gets that extra push of iTunes love by making their kids charts, to raise as much money for Miss Getty and her fellow SMA Warriors as possible. We’ve built a website, and created a couple of different nifty embed-able streaming widgets so that you can help spread the word in any way you’re comfortable.
Obviously a post on your main blog would be amazing, but we totally understand how valuable that space is, so please know that tweets, sidebar love, facebook link-ups, and/or any other method of sharing you see fit are all hugely appreciated. Seriously, any way you can help us get the word out is one more person creating awareness about this disease, and that’s ultimately our goal here, with a cure as close as only a few years away.
Alex and Angela (the artists) are available to chat, and obviously I’m happy to answer any questions you may have. You can check out the album and get more info on Getty and SMA here: www.lullabiesforgetty.com (still in beta).
Here’s an example of our widget in action, and sidebar version will be posted on this page shortly (everyone’s working for free, so we’re down to the wire!): http://the818.com/getty-widget-sample/ (code pasted at the bottom of this email.)
Thanks for your time. Thanks for your blog. Thanks for anything you can do the help Getty and those fighting with her.
Hope this email finds you well, please let me know if there’s anything I can do to help you help us
~ xoxoxo Morgan
Yup emails like those crush me because I become soooo amazingly thankful for the life I have and the struggles I have in my life. I really hope you’ll take a second to check out album on iTunes, and if you’re looking for more ways of connecting with them here you go…